I'm raising awareness and funds for children with dementia.

By Daniela Negrete Haschke Join Me

Tragically, hundreds of thousands of children across the world suffer from dementia. It’s caused by more than 100 life-limiting neurodegenerative disorders, many of which are not yet understood. In Australia, a baby is born every 3 days with a childhood dementia disorder from which they will die, most likely before their 18th birthday. Before they die, they live with chronic, increasingly severe symptoms. Childhood dementia causes a similar number of deaths in Australia to childhood cancer for patients aged 0-14 years. Yet most people are unaware of childhood dementia. Correspondingly, finding care and support is extremely difficult for families. Research is scant and there are no cures or treatments. Your donation supports ongoing, urgent work to accelerate research, improve care, and to make childhood dementia a health priority. Thank you for your generosity.

My Updates

Ela's Story

Sunday 21st Jun

Hi, my name is Daniela, and for the past eight years I’ve had the privilege of knowing, supporting, and loving two incredible siblings who live with Childhood Dementia.


Over the years, I’ve witnessed the heartbreaking reality of childhood dementia, a group of conditions that gradually steal skills, memories, and abilities from children and young people.


This July, just one week before my 30th birthday, I’ll be taking on my first HYROX Women’s Doubles. It will be one of the biggest physical challenges I’ve ever undertaken, and I wanted to use this milestone birthday to support a cause that has become incredibly close to my heart.


My goal is to raise $3,000 for Childhood Dementia Initiative while also helping raise awareness of a condition that many people have never heard of.


Every donation, no matter the size, will help fund research, advocacy, and support for children and families affected by childhood dementia.


Thank you for supporting me, cheering me on, and most importantly, helping shine a light on this important cause.


For Isla, for Jude, and for every child and family impacted by childhood dementia.

Thank you to my Sponsors

$1.04k

Helen

Shining light!

$332.70

Xavier

Congratulations on finishing the Hyrox race in record time, even after all the injury setbacks. You give hope to us all. ❤️

$250

Kristian Murray

Proud of you goodluck this weekend x

$200

Skadi Solutions

$162.75

Nadine Hardy

You are so amazing to do this, Ela. You are a gem.

$106.12

Meg, Oscar, Isla & Jude

Go you super star! We love you Ela!

$106.12

Michael Crouch

Go Daniela! This is huge - wishing you all the very best!

$106.12

Kris

Go Ela you wonderful human!

$106.12

Sharon Longridge

$106.12

Isi & Tom

Go Ela!!! You’ve got this strong queen!!!

$106.12

Nicole Fasseau

Love your work, gorgeous Daniela. All the best.

$106.12

Ange

absolute legend

$106.12

Joanne Murphy

Such a great cause. Well done on raising awareness!

$100

Al Donnell

Go Ella!!!!

$100

Ingrid Murray

Happy Birthday Dani! Best of luck with your fitness challenge and in reaching your fundraising goal! 🥰 💪

$80.96

Shivangi

You rock star - what an effort!

$55.95

Nick G

$54.84

Owen Mitchell

Go Ela!

$54.84

Abby And Jon

Supporting this incredible effort for two very special children we know and care about. Thank you for shining a light on childhood dementia and making a difference.

$54.84

Agos Torresi

Arriba Ela con todo!!!! 🤩🤩🤩

$54.84

Julieta Meneghini

Vamos Ela querida!

$54.84

Matias P.

$54.84

Lyndsay Sloan

$54.84

Joanne Killick

So proud of you and all you do for the initiative! Good luck and enjoy HYROX

$54.84

Dre

Love u sis!

$54.84

Laura Fitzgerald

We are so so so proud of you Ela You're an inspiration Love Laura and Taylor

$53.64

Sofia Aragone

Vamos Elaaa!!

$33.87

Ines

Vamos Elaaaa!!

$23.50

Maite Bordachar

Go ELA!!!

$23.50

Nathan B

$20

Cath Macmahon

Well done!