Is your family impacted by childhood dementia? Connect with us here.
Your experience and insights can create change
We understand that watching your child decline is acutely distressing and, too often, isolating. We’re here to shine a light on childhood dementia, to fast track treatments, and to find better ways to care for all children and young people living with dementia.
Your lived experience gives you a unique insight. To build greater understanding and awareness of childhood dementia and to educate health and policy decision makers, the voice of those impacted by childhood dementia needs to be heard. You can share your knowledge and amplify calls for change and action by joining the Childhood Dementia Advocates Program. You can participate as much as suits you, and in the ways that you want to, and you’ll be standing alongside families from across the world.
To become a family advocate, please tell us in the form below how to connect with you and we will be in contact.
Services Directory for Australian families
Childhood Dementia Initiative maintains a services directory for families in Australia. It's designed to help parents and carers find and access support services.
Did you know: You can now seek support for your child from Dementia Support Australia (DSA). DSA can help with behaviours and psychological symptoms your child is experiencing that impact their care or the way care is provided. To find out more, connect with the DSA support team here.