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The many neurodegenerative disorders that cause childhood dementia are individually rare. Collectively, however, they affect around 700,000 children and young people worldwide. We're driving accelerated action for all of these disorders and referring to them under the umbrella term ‘childhood dementia’.

You can see a complete list of the disorders included under this term here.

“By working under the umbrella of childhood dementia there is tremendous potential to achieve economies of scope and scale and translate research into therapeutics and diagnostics. It is such an innovation.”

- Tiffany Boughtwood, Director, Childhood Dementia Initiative

Challenging Childhood Dementia Symposium

Save the Date! The second annual Challenging Childhood Dementia Symposium will be held in Sydney on 14 March 2023.

The inaugural Challenging Childhood Dementia Symposium was held in Sydney on Tuesday 1 March 2022. This symposium was an opportunity for researchers, clinicians and experts to learn about and discuss the needs, challenges, opportunities and priorities in the development of therapeutics for children with dementia. A report from the symposium is available now.

Learn more

Childhood Dementia Research Alliance

We are bringing together the world’s brilliant health and medical researchers to work collaboratively to develop new effective treatments. The alliance will will keep researchers, clinicians, industry, patient representatives and anyone interested in childhood dementia research up to date on our progress, help us identify research priorities and increase opportunities for collaboration.

If you would like to join the alliance please leave your details in the form below and we'll be in contact.  

Research funding partnerships

We advocate for investment into all types of childhood dementia research. We welcome genuine research partnerships and can provide consumer input into research proposals and/or link you up to other experts in the field to establish new collaborations. Please get in touch if you are applying for funding for childhood dementia research, we would love to hear your ideas.

Childhood Dementia Knowledgebase

We are currently building a database containing all the essential information about the 70+ conditions that cause childhood dementia, gathered from the literature and with input from experts in the field. This will be made publicly available as soon as possible. In the meantime, if you need data about childhood dementia, please get in touch. We may be able to help you!

Please fill in the form below and we'll be in contact with you.

Contact us

If you would like more information or would like to speak with us directly, please get in touch with our Head of Research, Dr Kris Elvidge: kris@childhooddementia.org