White paper
Our white paper, Childhood Dementia: the case for urgent action was published in 2020 to highlight the size, scale and wide-reaching impacts of childhood dementia. It also outlined the overwhelming opportunity to act.
There are more recent reports on the extent and impact of childhood dementia now available. Some are linked below.
Featured reports
The collective burden of childhood dementia: a scoping review, Brain, 2023
Data on incidence, prevalence, mortality, age of onset and diagnosis. This study defines the 145 genetic disorders that cause childhood dementia.
State of Childhood Dementia 2024
Read about the devastating reality faced by Australia’s children with dementia.
From Crisis to Hope: The National Childhood Dementia Unit, 2025
The transformative solution to Australia's childhood dementia care crisis.
