Dr Alexandra Johnson MBBS, MMed, FRACP

“The Childhood Dementia Initiative provides hope and advocacy for the families of children affected by childhood dementia. I'm excited by the potential translation of novel research into tangible gains in treatment in this area of great need.”

Alex is a child neurologist at Sydney Children’s Hospital (SCH) and consults at private rooms. She helps to care for a number of children and families affected by childhood dementia as part of her busy clinical load as well as maintaining broader interests in neurocognition, disability, epilepsy and rare neurogenetic disease. She supports continuing education for trainees by organising the Paediatric Neurology Lecture series for Australian and New Zealand trainees, and leads the Education and Training Committee for the Australia and New Zealand Child Neurology Society. She is the principal investigator at SCH for several international clinical trials bringing novel treatments to children with neurocognitive disability. She has an interest in Neuronal Ceroid Lipofuscinosis (NCL) and is the Chair for the Medical and Scientific Advisory Board for the Batten Disease Support and Research Association (BDSRA) Australia.

In clinical practice, Alex aims for compassionate care and quality of life and is passionate about supporting families and patients when dealing with neurocognitive disease and disability.

Read more about the members of our Scientific and Medical Advisory Committee.