Login
Login

Childhood Dementia Giving Day

YOUR GIFT DOUBLED 

Matched donations start in:

WE CAN'T WAIT

Our clock ticks faster

Their time is short.
Your impact isn't.
Give today.

Donate
  • 1
  • 2
  • 3

$0

Raised of $300,000 goal

I'd like to make this donation

Please select a donation amount

$70
$150
$250
$500
$

Your Details

chevron_left

Share this page

All donations received on Childhood Dementia Day, 23 September 2026, will be matched up to the value of $150,000 thanks to the Hooper Shaw Foundation. That means your donation will have double the impact.

For children with childhood dementia, time moves differently. Skills, words and memories are lost while the world keeps moving forward. That's why we're saying it plainly: We Can't Wait. 

$70

=

$140

$500

=

$1000

For children with childhood dementia, time moves differently. Skills, words and memories are lost while the world keeps moving forward. That's why we're saying it plainly: We Can't Wait. In Australia, 2 babies are born every week with a condition that causes childhood dementia and for every one of them,
the clock ticks faster.
Everything we've achieved so far has started with families. By sharing their stories - the diagnoses, the daily realities, the love and the loss - they've taken childhood dementia from something almost no one had heard of to something governments, researchers and health services can no longer ignore. Family advocacy has built recognition, driven research and put childhood dementia on the national agenda. This Childhood Dementia Day, you'll learn more about Angelina, Caleb, Eddie, Hannah, Noah, Thomas and Toby. Some of these children are living with childhood dementia today. Others are the reason their families keep fighting. Every one of their stories is a call for change.

Awareness alone won't change what happens after a diagnosis. Families need health, disability and care systems that understand childhood dementia and respond to it, and that takes sustained pressure, evidence and support behind every family.


Their time is short. Your impact isn't. Donate today. 


We Can't Wait for this to keep happening to more families.

Angelina loved performing and she dreamed of becoming a makeup artist. She was social, goal-driven and full of plans. She loved dancing to music videos and colouring her hair.

Then, at 14 she had her first seizure, and at 15 her family was told she had Lafora disease, a rare genetic condition that causes childhood dementia. Angelina passed away in 2025.

Donate

It's time to change the future for all children with dementia

"When you hear ‘dementia’, you picture old age. You picture grandparents.

You don't picture a child.

You don't picture someone losing words they have just learned. Forgetting how to walk to a room they've lived in their whole life. Losing the ability to chew. To swallow. To recognise the brother who used to chase them around the backyard.

But that is what childhood dementia is. A progressive, relentless, and at the moment untreatable, brain decay that begins in childhood." 
- Jack, Thomas's big brother

Donate

It's time to change the future for all children with dementia

"When you hear ‘dementia’, you picture old age. You picture grandparents.

You don't picture a child.

You don't picture someone losing words they have just learned. Forgetting how to walk to a room they've lived in their whole life. Losing the ability to chew. To swallow. To recognise the brother who used to chase them around the backyard.

But that is what childhood dementia is. A progressive, relentless, and at the moment untreatable, brain decay that begins in childhood." 
- Jack, Thomas's big brother

Donate

It's time to change the future for all children with dementia

"When you hear ‘dementia’, you picture old age. You picture grandparents.

You don't picture a child.

You don't picture someone losing words they have just learned. Forgetting how to walk to a room they've lived in their whole life. Losing the ability to chew. To swallow. To recognise the brother who used to chase them around the backyard.

But that is what childhood dementia is. A progressive, relentless, and at the moment untreatable, brain decay that begins in childhood." 
- Jack, Thomas's big brother

Donate

It's time to change the future for all children with dementia

"When you hear ‘dementia’, you picture old age. You picture grandparents.

You don't picture a child.

You don't picture someone losing words they have just learned. Forgetting how to walk to a room they've lived in their whole life. Losing the ability to chew. To swallow. To recognise the brother who used to chase them around the backyard.

But that is what childhood dementia is. A progressive, relentless, and at the moment untreatable, brain decay that begins in childhood." 
- Jack, Thomas's big brother

Donate

It's time to change the future for all children with dementia

"When you hear ‘dementia’, you picture old age. You picture grandparents.

You don't picture a child.

You don't picture someone losing words they have just learned. Forgetting how to walk to a room they've lived in their whole life. Losing the ability to chew. To swallow. To recognise the brother who used to chase them around the backyard.

But that is what childhood dementia is. A progressive, relentless, and at the moment untreatable, brain decay that begins in childhood." 
- Jack, Thomas's big brother

Donate

Our Sponsors