Hudson, Holly and Austin
Renee is mum to Hudson, Holly and Austin who all have childhood dementia caused by Niemann-Pick disease type C. In this candid interview, Renee generously shares some of the impacts of childhood dementia on her family.
Renee is one of the many families working to generate greater awareness and action to help all children with dementia. Childhood Dementia Initiative is very grateful to her for sharing her experience.
Renee's experiences with education, disability support & palliative care
In this video, Renee speaks about her experiences accessing support across education, palliative care and disability support through the NDIS.The National Disability Insurance Scheme (NDIS) is Australia’s government scheme that gives funding for disability support.)
We also asked her what she thinks children with dementia need.