Working with families
These resources have been developed to support you when working with families and children.
5 requests from families: a guide on how to work together
This information sheet summarises for you the 5 major themes collected during a series of focus groups and interviews with parents and carers. These focus groups were conducted in 2021 and 2022 to collect information on how health and care professionals can work with families.
Video series: Working with families and children with dementia
These videos provide an opportunity to hear directly from parents and carers. They share insights gained through their lived experiences working with health and care professionals. Their interviews align with the 5 themes identified during a series of focus groups and interviews undertaken with parents and carers.
Episode 1: We need respect, care, kindness and hope
Episode 2: Please understand we are the experts on our children
Episode 3: Please do some research to know more about childhood dementia
Episode 4: Use your knowledge of my child’s dementia
Episode 5: Recognise the impact of childhood dementia on the whole family
Episode 1: We need respect, care, kindness and hope
Parents of children with dementia share the value of being treated with respect, care and kindness by healthcare professionals.
Episode 2: Please understand we are the experts on our children
Parents of children with dementia share the value of health professionals understanding they are the experts on their children.
Episode 3: Please do some research to know more about childhood dementia.
Parents of children with dementia share the value of health professionals doing some research to know more about childhood dementia.
Episode 4: Use your knowledge of my child’s dementia
Parents of children with dementia share the value of health professionals using their knowledge to give children the care and support they need.
Episode 5: Recognise the impact of childhood dementia on the whole family
Parents of children with dementia share the value of health professionals recognising the impact of childhood dementia on the whole family.
JOIN US: Information sessions rolling out nationally
Childhood Dementia Initiative is rolling out a series of free information sessions across Australia. The sessions are ideal for health and social care workers, carers and policymakers who would like a broad understanding of the causes, symptoms and impacts of childhood dementia. Find out when a session is coming to you.
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