Working with families

These resources have been developed to support you when working with families and children.

5 requests from families: a guide on how to work together

This information sheet summarises for you the 5 major themes collected during a series of focus groups and interviews with parents and carers. These focus groups were conducted in 2021 and 2022 to collect information on how health and care professionals can work with families.  

Video series: Working with families and children with dementia

These videos provide an opportunity to hear directly from parents and carers. They share insights gained through their lived experiences working with health and care professionals. Their interviews align with the 5 themes identified during a series of focus groups and interviews undertaken with parents and carers.

Episode 1: We need respect, care, kindness and hope

Episode 2: Please understand we are the experts on our children

Episode 3: Please do some research to know more about childhood dementia

Episode 4: Use your knowledge of my child’s dementia

Episode 5: Recognise the impact of childhood dementia on the whole family

Episode 1: We need respect, care, kindness and hope

Parents of children with dementia share the value of being treated with respect, care and kindness by healthcare professionals.

Episode 2: Please understand we are the experts on our children

Parents of children with dementia share the value of health professionals understanding they are the experts on their children.

Episode 3: Please do some research to know more about childhood dementia.

Parents of children with dementia share the value of health professionals doing some research to know more about childhood dementia.


Episode 4: Use your knowledge of my child’s dementia

Parents of children with dementia share the value of health professionals using their knowledge to give children the care and support they need.


Episode 5: Recognise the impact of childhood dementia on the whole family

Parents of children with dementia share the value of health professionals recognising the impact of childhood dementia on the whole family.