• attach_money
  • person
  • credit_card

I'd like to make this donation

Please select a donation amount

$75
$110
$200
$500
$

Your Details

Payment Details

$0.00
I'd like to add a little extra to help cover fees.

A legacy of love that will last forever

On a winter morning in 2018, 6 years after her diagnosis. Mia died at home. She was 9 years old.

Mia had childhood dementia.


Mia was so much more than her diagnosis. Mia was a first child, a first granddaughter, the child that captured everyone's affections with her ‘Uh Oh’ and sweet smiles.  She was a child who played with tonka trucks, and whose eyes would light up when her Dad walked in the door. She squealed and made kissy noises, and her smile lit up her mother’s heart. She was a big sister, and had a beautiful relationship with her brother Toby, two peas in a pod.

Over and over again families share their most painful and personal experiences of childhood dementia. They share their children’s photographs and videos. Of joy and of pain. They share their most precious memories. They give us this gift, so that real meaningful change can happen so that no other child, no other family has to face the same. 

Donate now to honour them


Their legacies are changing the way research is collaborated on and funded. Their legacies are changing the way children are seen and cared for across healthcare services. Their legacies are changing the way governments are supporting families. Their legacies are connecting families of children with dementia to each other, lifting them out of isolation. Their legacies are changing the way communities understand and support children with dementia. 

While Childhood Dementia Initiative is all about change for future generations, it was formed as a legacy of children with dementia. Of children like Mia. It is a legacy of the far too short and painful lives they have lived, and the hope and change they have inspired. It is a legacy of children that are so deeply loved, a love that will last forever.  

Thank you for driving change that will last for generations to come.