Childhood dementia

information sessions

Childhood Dementia Initiative is delivering free information sessions across Australia.

The sessions are ideal for health and social care workers, researchers, parents and policymakers who would like key statistics and a broad understanding of the causes, symptoms and impacts of childhood dementia. 

Why come? Because childhood dementia affects 1 in 2800 babies born in Australia. That’s more than better-known conditions like cystic fibrosis. Sadly, approximately 75% of children have a life expectancy of under 18. They and their families face unique and complex challenges. Awareness and understanding are essential to transforming care, research and policy responses to childhood dementia.

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Upcoming information sessions


10.00 am to 12 pm, Tuesday 28 Mar 2023
The Auditorium at Perth Children's Hospital
15 Hospital Ave, Nedlands WA 6009, Australia

This free 2-hour introductory session on childhood dementia will give you a broad understanding of the causes, symptoms and impacts of childhood dementia. 

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1.00 to 3.00 pm, Thursday 4 May 2023
Children's Centre for Health Research
62 Graham St, South Brisbane 

Childhood Dementia Initiative's Dr Leigh Donovan will be joined by the following guest speakers:

  • Anita Inwood: Service Director and Metabolic Nurse Practitioner, QCH
  • Dr Anthony Herbert:  Director, Paediatric Palliative Care Service, QCH
  • Alyson Gundry:  Allied Health Clinical Lead in the E-Paediatric Palliative Care Service
  • Alison McLarty:  Nurse Educator, Quality of Care Collaborative Australia

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12.30 to 2.30 pm, Tuesday 6 Jun 2023
Royal Children's Hospital Foundation
Level 2, 48 Flemington Road, Parkville 

Childhood Dementia Initiative's Stakeholder Engagement Manager, Dr Leigh Donovan, will run this 2-hour introductory session on childhood dementia. Leigh will welcome a multi-disciplinary panel of Melbourne-based colleagues who will share their experiences walking alongside families caring for a child with dementia.

Reserve your place

We will continue to update this page as events are booked. 

Don't see a session in your area? Tell us below to notify you of events coming to your state. 

We will endeavour to prioritise areas with high demand. 

Notify me when an information session is coming to my state