The Childhood Dementia Initiative 2024 report, Childhood Dementia Global Clinical Trial Landscape Analysis, revealed ongoing, pervasive research neglect and inequity as well as concerning trends in global childhood dementia research activity. 

In this webinar, the results of this report were presented followed by a panel discussion and Q&A with global experts. Family Advocate, Felicity McManus, provided lived experience perspectives and insights. Opportunities to accelerate the development of life-saving treatments and cures were also discussed. 


  • Dr Matthew Ellinwood, Chief Scientific Officer at the National MPS Society and Professor Emeritus of Animal Science, Iowa State University.
  • Dr Leslie Meltzer, Chief Medical Officer, Orchard Therapeutics.
  • Felicity McManus, Family Advocate and parent of a child with a dementia condition.
  • Professor John Christodoulou, Chair of Genomic Medicine, Department of Paediatrics, University of Melbourne and the Co-Leader of the Brain and Mitochondrial Research Group at the Murdoch Children's Research Institute.
  • Dr Kristina Elvidge, Head of Research, Childhood Dementia Initiative.

Co-chaired by: 

  • Professor Kim Hemsley, Professor at Flinders University and Head of the Childhood Dementia Research Group at Flinders Health and Medical Research Institute. Kim is a member of Childhood Dementia Initiative's Scientific and Medical Advisory Committee.
  • Tiffany Boughtwood, Managing Director of Australian Genomics. Tiff is a Childhood Dementia Initiative Board Member and Chair of the Scientific and Medical Advisory Committee.