Hope For Ethan & Ronin
Your support can make a difference for all kids with dementia
Ethan & Ronin Lloyd
Ethan and Ronin have Sanfilippo Syndrome. Without treatment, they will not live to adulthood. You can help children like Ethan & Ronin by contributing to our campaign to raise funds to progress critical research, care, and advocacy for all childhood dementia conditions, including Sanfilippo syndrome.
Ethan and Ronin are energetic and loving young boys. In 2021 they were both diagnosed with Sanfilippo Syndrome. Coming from families with no known genetic conditions, the diagnoses were particularly shocking.
Both boys are absolutely loveable 'cuddle bugs'. They just have such a happy disposition and are so sweet and caring. Ethan has very limited speech but just wants to give everyone a hug. Ronin’s superpower is his absolute conviction that he can do anything. He’s just a loveable and happy-go-lucky kid, and he has a great laugh.
The future is not what we thought, we’re at a stage where the disease hasn’t progressed, but when I look at other children with Sanfilippo, I think, that’s where our boys are going, and that will bring me to tears — all the time.
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Fundraising ideas to support Ethan & Ronin
Sign up for an existing event or create your own fundraising activity to show your support. From morning teas to multi-day adventures, the options are endless.
Trek of a lifetime
Sign up for our bucket-list trekking adventure along the Inca Trail to Machu Picchu in 2025, and fundraise for kids with dementia.
Run for free
Run a half-marathon, marathon, or an ultra, fundraise for kids with dementia, and if you hit your target we'll reimburse your entry fee.
Choose your own
Got something else in mind? Bring your idea to life by creating your own fundraising page and sharing it with your community.
A big thank you to our supporters
The real heroes who are kindly helping us achieve our goal.
Beach2Beach Sanfilippo Superheroes Team
CyRise and Team
Mabel and Pearl McKinnon
We went to Afters with Ethan and Ronin - such sweet kids. Our thoughts are with you all
Jessica Ascione
With love.
Annie Wild
Hoping this can work towards making the future brighter for the boys and all children with San Filippo
Amie's Mum
Love and hugs for 2 beautiful boys Ethan and Ronin xxx
Amie Nebauer
Such a worthy cause, truly the most beautiful family!
Marisa Pinter
For Ethan and Ronin.
Marie and Peter English
Donated on behalf of Gerry Henderson's 90th birthday.
John and Emma Henderson
Happy Birthday Gerry - amazing 90th :-) Hopefully this goes a little way to assist the family and future children. xx
Lindsay Chugg
Max Vollebergh
VASANTA IYER
Love Vas x
Lolita Dsouza
Greg and Annie Knight
HI Mal, Sorry we could not make it over for the party! Love from Greg and Annie
Melita, Aod & Leo
Happy birthday T. One dollar for each year!
