Hope For Ollie
Your support can make a difference for all kids with dementia
Ollie Schimanski
After years of Ollie having seemingly innocuous symptoms (reflux, hearing loss, speech delay, tonsil/adenoid issues), the puzzle was solved, with a terrible diagnosis. We were devastated to be told he has Sanfilippo.
Ollie is one of (maybe) 3 kids in NZ who suffers from the syndrome. And it’s not all doom and gloom - Ollie is still the same amazing little monkey, we just understand him better and he continues to blow us away with his pure joy for life. He adores his big sister (who is not affected) and loves tractors, motorbikes, mountain biking and “hammer nailing”.
We are hoping for a clinical trial, but at this moment, there are none for Ollie’s subtype. And while we wait, we want to raise money to progress critical research, care, and advocacy for all childhood dementia conditions, including Sanfilippo syndrome.
We, along with many others, hope for a world without Sanfilippo Syndrome.
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Fundraising ideas to support Ollie
Sign up for an existing event or create your own fundraising activity to show your support. From morning teas to multi-day adventures, the options are endless.
Trek of a lifetime
Sign up for our bucket-list trekking adventure along the Inca Trail to Machu Picchu in 2025, and fundraise for kids with dementia.
Run for free
Run a half-marathon, marathon, or an ultra, fundraise for kids with dementia, and if you hit your target we'll reimburse your entry fee.
Choose your own
Got something else in mind? Bring your idea to life by creating your own fundraising page and sharing it with your community.
A big thank you to our supporters
The real heroes who are kindly helping us achieve our goal.
Cate Williams
Pop Dave and Brenda
Such beautiful family, hope this will help amazing olllie who we adore __
Emma Salis
______
Sian, Nick, Cami, Maya, Leo, Freida
The coolest wee man around - sending all the love and tractor and motorbike hugs, and some hammer-nailing hi fives __
Sharlene Robinson
Sophi Irene and Iris
Oh no, I wish Ollie can have a clinical trial. You are such a helpful child. Sending love to the beautiful family.
Baker Family
Lots of love to you all xxx
Dave Menefy
Love from pops Dave fir beautiful boy __
Toni Crengle
Sharon & Brian
Sending much love & strength from our family to yours xx
Libby
I am not a scented candle? Sending loads and loads of love
Jo Putt
Rachel McRae
Lanny, Ben, Henry and Eleanor
Go Ollie! __
Oma (Wilma) Schimanski
This was the money donated at my 70th birthday party in lieu of gifts.
Christina Reymer
Delighted to make a contribution in lieu of a gift for Wilma?s 70th birthday.
St Mary's Catholic Primary School Rotorua
School Purple Day Fundraiser for Sanfilippo Childrens Foundation. Inspired by one of our students Ollie
K Andrews
Schimanski family
Just a thank you for your help and support with Ollie so far. Also, I achieved the 5km/day in May - next year I'll do a proper page!
Sarah Ziessen
Rachel McRae
Ang & Bevan Brake
Such a cool kid, and an awesome family. Love you all.
Margaret McMillan
Steph Wakeman
Lisa Culligan
All the best to Charlotte, Mark and family.
Kathryn Ross
So sorry to hear about Ollie's diagnosis. He is such a sweet boy - he often helps me put Jake's bag in his cubby hole when we drop him off in the morning. A clinical trial would be brilliant x
Ella (La)
My Mr lollie! We love you and your family so much! Love your ?La!?
Ranolf Pharmacy Team
We love you Ollie and hope this little donation will help you xx
Bizzy, Jimmy and Leo
We love you little man __ xx
Jani, Rishay and Vijay
Love you Ollie! Keep smiling!
?Lollie!? Harper says. ?Batman and Paw Patrol,? Lew-lis says. ?Meet you in the cul de sac?? we say. You?re good neighbours and great friends! Much love from our family to yours.