Peter Chalouhy
Your support can make a difference for all kids with dementia
Peter Chalouhy
We got Peter’s diagnosis four days before his fourth birthday, while I was heavily pregnant with our third child Natalie. The impact of Sanfilippo on our family life was tough.
Peter had a lot of behavioural issues but his behaviour quietened down as the disease progressed. It took its toll on his siblings, but they continued to shower him with love and affection.
Sanfilippo stole Peter's words, his ability to walk and eventually his life, but throughout it all, his smile and his shining eyes never left him. We watched old videos remembering the way he was.
We need a cure. We need all children with childhood dementia to live! We hope and pray that one day a treatment will come.
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Fundraising ideas to support Peter
Sign up for an existing event or create your own fundraising activity to show your support. From morning teas to multi-day adventures, the options are endless.
Trek of a lifetime
Sign up for our bucket-list trekking adventure along the Inca Trail to Machu Picchu in 2025, and fundraise for kids with dementia.
Run for free
Run a half-marathon, marathon, or an ultra, fundraise for kids with dementia, and if you hit your target we'll reimburse your entry fee.
Choose your own
Got something else in mind? Bring your idea to life by creating your own fundraising page and sharing it with your community.
A big thank you to our supporters
The real heroes who are kindly helping us achieve our goal.
Nawal - Surf Coast Century Run
Jeanette Smith
Jack Tarchichi - Facebook Fundraiser
Best wishes Peter.
Tracey Maxwell
Sending hugs and kisses to you Peter. Xxoooxxx
Debbie Chalmers
Happy birthday __ beautiful. May God bless you over and over
shelli chalmers
Ode to Hope. Godbless you Peter. Gorgeous little man x ______
Milana Brankovic
Shamiran Warda
May god bless you and your family always.
Anonymous
May the son of the living God protect you and cure you. NEVER LOOSE FAITH ____
Ann Nguyen
Racha Matar
lahoud
praying
