Hope For Skye
Your support can make a difference for all kids with dementia
Skye Robson
Skye has Sanfilippo Syndrome. Without a treatment, she will not live to adulthood.
Our story is the same as everyone else’s battling this disease: we walked into that appointment with a slightly delayed child and walked out with one who was terminally ill.
Our world came crashing down, we were stunned. My wife is Thai, born in Kanchanaburi, Thailand and I was born in Melbourne, Australia. This condition has been traced back to the Dutch and the odds of us both being carriers is, well, crazy. A trip to the Metabolic Clinic at the Royal Children’s Hospital the next day and a blood test confirmed that Skye has MPS III B.
Since Skye’s diagnosis we still have times where tears are shed, but we are determined to bring her love, happiness and quality of life, not to mention to seek out a cure. At the same time, we have our son Luke to raise, who is an amazing big brother to Skye; always looking out for the welfare of his little sister.
Skye likes swimming, dress-ups, AFL and playing with big brother Luke. She has a bubbly and vibrant personality and is always up to mischief. Her family fear everything she will one day lose.
Luke and Skye are our little Angels and always will be.
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You can help
Donate today
It's a simple way to show your support for Skye and all kids with dementia. Donations are secure and tax deductible in Australia.
Join Steps for Skye this August
For the fifth year in a row, Skye's carers, Teghan and Bree, will be clocking 15,000 steps a day for the month of August to show their support. You can join them.
Other fundraising ideas to support Skye
Sign up for an existing event or create your own fundraising activity to show your support. From morning teas to multi-day adventures, the options are endless.
Trek of a lifetime
Sign up for our bucket-list trekking adventure along the Inca Trail to Machu Picchu in 2025, and fundraise for kids with dementia.
Run for free
Run a half-marathon, marathon, or an ultra, fundraise for kids with dementia, and if you hit your target we'll reimburse your entry fee.
Choose your own
Got something else in mind? Bring your idea to life by creating your own fundraising page and sharing it with your community.
